Just before Christmas, Miles had another follow up appointment with the surgeon. We got good news at that appointment, that Miles' head width/length ratio measurement had just finally made it into the "normal" range. However, the surgeon said that we have a while to go with the helmet just to keep guiding the shape of the head. That was not unexpected for us and really quite okay since he still has a large soft spot on the top of his head. :) The helmet has never really bothered Miles at all. I actually think he would feel weird without it. He is so laid back and relaxed!
It is amazing what the body can do. The portion of the skull that was removed during the surgery is probably about 70% re-grown already. We have been able to feel the large soft spot that followed the surgery get smaller and smaller each week. And overall, Miles is doing great. He is meeting his milestones and is only going to physical therapy once per month now to treat only slight tightness in his neck. Each time we take him to the orthotist to get his helmet adjusted, she says he is looking great. Last time we went, she even gave me the inclination that he may be finished with the helmet by his first birthday. We aren't getting our hopes up though, just in case. :)
Miles will have another appointment with the surgeon late February/early March when we will know more information on how long Miles will need the helmet. We are continuing to pray that his new bone growth does not fuse again, and that his head continues to grow correctly; all going towards the big prayer of no more surgeries!
Looking back on 2012, it was definitely a roller coaster year for us. We went from the emotions and excitement of having a baby, then the fatigue of having a new baby and a toddler, then the worry and anxiousness of getting Miles' diagnosis and plan for surgery, then of course the stress of the surgery, and then the excitement and happiness of a successful surgery, followed by a little worry here and there about his recovery. :) And although there were a lot of stresses in 2012, we were blessed beyond what we could've imagined. God saw us through everything and provided exactly what we needed when we needed it. Awesome.
For 2013, we are hoping for a less eventful year :) and a year of good news. We are calm and confident in the start of this new year as we know that God has his plan for it and it is good.
